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M94A1960.TXT
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1994-10-24
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Document 1960
DOCN M94A1960
TI An effective system for tracking challenging populations in community
based HIV research.
DT 9412
AU Fuentes L; el-Sadr W; Capps L; Harlem Hospital Center, New York, NY
10037.
SO Int Conf AIDS. 1994 Aug 7-12;10(1):412 (abstract no. PD0256). Unique
Identifier : AIDSLINE ICA10/94370615
AB OBJECTIVES: To describe the various components and analyze the outcomes
of a system developed to collect follow-up data on minority patients
participating in studies conducted in New York City by the Harlem AIDS
Treatment Group. METHODS: A plan for tracking patients was developed by
project staff, clinicians, an advisory committee and people living with
HIV. The plan included the collection of locator information, building a
strong bond between patient and provider, provision of incentives,
anticipating missed visits, a contact strategy, networking with city and
local resources, and the use of staff that is representative of the
community being served. RESULTS: The lost to follow-up rate among 362
patients participating in an Observational Data Base Study decreased
from over 70% to 24%. Ongoing efforts continue to improve the collection
of data. CONCLUSIONS: The methods employed have facilitated the
collection of important HIV data and helped to fortify the bond between
patient and provider, a bond which is essential for providing high
quality patient care and collecting data in community based research.
Challenging populations, minorities and women from lower economic
groups, can effectively participate in HIV longitudinal studies.
However, specific measures are needed to eliminate or reduce barriers,
including patient incentives, the use of personnel representative of the
community, and the promotion of strong patient-provider bond.
Appropriate resources are needed to conduct such an approach.
DE Continuity of Patient Care/*ORGANIZATION & ADMIN Female Follow-Up
Studies Human HIV Infections/*THERAPY Longitudinal Studies Male
Minority Groups New York City Treatment Refusal Women MEETING
ABSTRACT
SOURCE: National Library of Medicine. NOTICE: This material may be
protected by Copyright Law (Title 17, U.S.Code).